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Talking to patients and public about their data (June 2023)

Following public engagement with over 100 people across Yorkshire (at shopping centres, libraries, hospitals), we assessed the publics understanding of using health and care data. This report is aimed to help care provider staff talk to patients and public about their data and how and what their data is used for across Yorkshire & Humber.

.pdf

1.2mb

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Exploring people's beliefs in how health and care records could and should be used

This report summarises insight research commissioned to inform the Yorkshire and Humber Care Record. It aims to explore the beliefs that people have about how their health and care records could and should be used, their boundaries for what they are willing for their data to be used for, their concerns around how their data could be used, and the reassurances they want about how their data is safe.

.pdf

6mb

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Joined Up Yorkshire and Humber Report 2020 - PHM explanations

An independent report by Brainbox Research which worked with people in Yorkshire and the Humber to co-design and test explanations for Population Health Management, data security and safety concepts.

.pdf

7.6mb

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Explaining data flow: Joined Up Yorkshire and Humber Report (February 2021)

This report describes research with the public to explore acceptability and to co-design explanations of how data flows in the Yorkshire and Humber Care Record (YHCR) and Population Health Management (PHM) Platform.

.pdf

4.1mb